So I got home, just in time for a nice flare up (or relapse as some call it). When you have MS you have some times that new symptoms pop up or old ones get suddenly worse, and I think that’s why I felt so awful on my trip, though it only actually started to get really bad on Saturday night. Things went from bad to worse really quickly which is how I knew it was a flare. My legs are just horrible right now and I can barely walk because they feel so heavy, painful and stiff. I also just have no energy, feel totally off balance and just generally awful. A lot like how I felt the last time I had a flare, when I was first diagnosed so I knew something was really wrong this time.
It’s a bit of a frustrating process to get treated. I contacted the nurse at my MS clinic and told her what was happening and because my neurologist isn’t in the clinic this week she had to tell me to go to emerg to be seen, which I was trying to avoid! If he was there I could just go right in and see him probably. The emergency room always takes forever. When I was first diagnosed they made it seem like from then on if I have issues they could call ahead to say I’m coming and get me right in to see neurology. But it of course doesn’t work like that. First you have to wait for the emerg dr to come and see you, then eventually they will page neurology, then they will decide in a course of treatment or if those pesky steroids are needed. It usually takes forever.
So I went in today to get the process started, with one of my best friends who is visiting (what timing!). They actually got me into a bed pretty quickly this time though, thankfully. I saw the first dr, who was actually a medical student reporting to the head dr, after about an hour of being there. He went to consult the other guy and I was waiting to hear back. About an hour after he left, while I was in the emerg bed, the nurse from the MS clinic called me saying my dr had approved the IV steroid treatment (which is what they give you to try and calm the inflammation and symptoms causing trouble) so I left emerg and headed up to the clinic to get my first dose. It actually worked out pretty well, because the dr’s at emerg (who were both very attractive, which didn’t hurt! But is also ki) were really unsure sounding about how to proceed. They really don’t like to start people on the steroids until a specialist confirms it at that hospital. It’s hard on the body and they don’t treat it lightly, which is probably a good thing.
I got to the clinic and I had my first dose, and then my friend wheeled me home, since I just live down the street. Now I have home care nurses coming for the next four days to give me the treatment at home, which I’ve never done before. I’m actually really glad they will do that because at least this way I don’t have to be admitted to the hospital! I just got home from my trip and would hate to have to go and stay there instead of my own, glorious bed!
I felt kind of bad that my friend had to tag along for all of it but she really didn’t mind and I appreciated the company! We have fun wherever we are, and we just passed the time giggling like little girls at all of the good looking doctors ;)
Back home now and happy to be, hopefully these meds will help me get back on my feet soon, literally! :)